Statement application

The school have asked me to put in an application for a Statement of Educational Special Needs for Ch.  I'm happy to do it because I think she really would benefit from some 1:1 support in the classroom.  She is clever but I think many of the concepts pass her by because she can't comprehend them visually.  Plus, what child wouldn't learn better with 1:1 support?

I've sent a letter to the council requesting that they assess her for a statement.  Now they are in the process of gathering information, they will contact the school, maybe her doctor and then make a decision.

Apparently it can take 3-4 months so I am not expecting a quick answer.

In other public services matters: since she turned 3 she is eligible for the mobility component of DLA and her rate has duly been increased.

CNGB3

...is the gene that is causing Charlotte's Achromatopsia.

This is the most common gene AND the one that they are in the process of planning a clinical trial on at Moorfields.

Good news - it's the right one to have!