Well, ok, so it's not mainstream media but Woman's Day is about the most widely read weekly woman's magazine in Australia so it must count for something:
Aside from calling it "Chromatopsia", it's quite nice to have any of these kind of human interest stories that raise awareness. I do think the parents missed an opportunity to raise funds for research and gene therapy by mentioning some such organisation as Foundation Fighting Blindness or Australian equivalent. It's a pity they didn't reference any future possible treatment at all. It might have given the story a little more poignancy or urgency. Maybe it's not the magazine's policy, but I couldn't see a particular point to the story (it's mainly just, "Here's our blind kid").
I do get sad when I see pictures of children walking with white canes. I am very, very much in denial about this part of Charlotte's future. I know not all Achromats use them but it has been a bit of a shock to realise how many actually do. I still joke that a guide dog is the only way this family are getting a pet!
My Mum has been very comforting about this for me. She is very good about the one-step-at-a-time stuff (so is M, so I am very lucky), she said that whatever Charlotte needs at whatever time, I will be glad to get for her and I will adjust to whatever it is at the time it is needed. One step at a time. And don't borrow trouble.
Saturday, 25 September 2010
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